Laying low while dusting off some old favorites.

The recent fears of a pandemic and warnings that suggest social distancing have got us trying to stay sane as we continue to spend more and more time in lockdown. As shaking hands and sharing germs with strangers has come to a screaming halt, I’ve found more and more time to read books, listen to records, and rekindle my interest in old hobbies. When I went downtown to Pike street to pick up some refilled medication. I got a real chill, seeing what a ghost town the often lively area has become. I’ll tell you, shit doesn’t get more real than this.

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Someone to Watch Over Me

Some of my earliest memories involve the time I spent at two of the gas stations that sat on Astoria Blvd. adjacent to La Guardia Airport. Though I recall having a regular sitter from the time I was in diapers until I entered the second grade. There were times, perhaps the weekend, when other arrangements would be made. Being that the gas station was less than a block away and my dad knew the owners and employees pretty well, asking them to keep an eye on me, although I was only four, seemed like a no brainer.

Though the times I spent in their care were few, I watched in amazement as the hours spent watching the mechanics placed cars on lifts and raised them with ease, as if they were spirited magicians. I couldn’t help but think if you can find the reason why a car isn’t performing at expected and fix it. They can probably solve most of the ills of the world. Having seen the engines and the transmissions of numerous automobiles at such a young age was fascinating. From these early experiences, I developed a love for the smell of gas, tires, and passion for pegboards. Those under the car roller boards and the way they magically disappeared underneath the car, absorbing the mechanic. Not releasing him until the engine purred like a kitten, forget about it. Though, in retrospect, a short time at a very young age. The experience gave me an appreciation and respect for blue-collar workers. The kind that knew how to fix things when they were broke and thoroughly wash their hands after a hard day’s work.

Years later, I think I was sixteen. I was reading my grand aunt’s copy of the Daily News when I came across a detailed story about that same owner’s indictment for numerous counts of arson, kidnapping, and attempted murder. Though somewhat shocking, by then, I had gotten used to hearing, reading, or seeing familiar faces in the news. I think it helped me in developing into an adult, shaping my understanding of what’s wrong and right and, ultimately, making decisions that would keep me on a moral path.Waztch (1 of 1)

Looking back, I wouldn’t change anything regarding my own experience. The men who were trusted to watch over me were always kind, making sure I didn’t get hurt or run into traffic. As kids, we often have built-in sensors that let us know when something’s not right. Maybe I wasn’t the most intuitive kid, but I never foresee any time when they would commit such horrid acts.

Stories that involve the time I spent at two of the gas stations that sat on Astoria Blvd. adjacent to La Guardia Airport. Though I recall having a regular sitter from the time I was in diapers until I entered the second grade. There were times, perhaps the weekend, when other arrangements would be made. Being that the gas station was less than a block away and my dad knew the owners and employees pretty well, asking them to keep an eye on me, although I was only four, seemed like a no brainer.

Though the times I spent in their care were few, I watched in amazement as the hours spent watching the mechanics placed cars on lifts and raised them with ease, as if they were spirited magicians. I couldn’t help but think if you can find the reason why a car isn’t performing at expected and fix it. They can probably solve most of the ills of the world. Having seen the engines and the transmissions of numerous automobiles at such a young age was fascinating. From these early experiences, I developed a love for the smell of gas, tires, and passion for pegboards. Those under the car roller boards and the way they magically disappeared underneath the car, absorbing the mechanic. Not releasing him until the engine purred like a kitten, forget about it. Though, in retrospect, a short time at a very young age. The experience gave me an appreciation and respect for blue-collar workers. The kind that knew how to fix things when they were broke and thoroughly wash their hands after a hard day’s work.

Years later, I think I was sixteen. I was reading my grand aunt’s copy of the Daily News when I came across a detailed story about that same owner’s indictment for numerous counts of arson, kidnapping, and attempted murder. Though somewhat shocking, by then, I had gotten used to hearing, reading, or seeing familiar faces in the news. I think it helped me in developing into an adult, shaping my understanding of what’s wrong and right and, ultimately, making decisions that would keep me on a moral path.

Looking back, I wouldn’t change anything. The men who were trusted to watch over me were always kind, making sure I didn’t get hurt or run into traffic. As kids, we often have built-in sensors that let us know when something’s not right. Maybe I wasn’t the most intuitive kid, but I could never foresee any time when they would commit such horrid acts.

The Road Ahead

Somewhere between awareness of my symptoms and diagnosing them came knowledge and acceptance that things might get a lot worse before they ever or never get better. While a pretty hard pill to swallow, (No pun intended.) I feel lucky that I have such a fantastic support system in my wife, family, friends, and doctors. However, there is one thing in particular that has become harder and Road Ahead (1 of 1)harder to accept as time goes by. That is, people always checking in on me and asking how I’m doing. Arguing with and fighting over her being too helpful or over-attentive. As time goes by, I feel myself becoming more resistant to help, while closing myself off to others. I also notice that it doesn’t take much to light my fuse or lose my temper. Whether it be snap reactions or just getting angry over things I can’t control, I’ve come to fear of becoming a cranky old son of a bitch than an optimistic one. As I move towards a new year and a new decade, I hope to move forward by taking somewhat of a step back to the practices I approached and learned from in the past. Simple things, such as meditation, breathing techniques, eating, and exercise, could all help while bringing improvements to my attitude, as well as my life. Hopefully, these little things can help in bringing me the peace of mind and mindfulness I so desperately seek.

 

Leave a Positive Footprint

If you let it, life can teach you a lot of things. Some of the most important things I learned were about empathy and how much of the happiness we enjoy comes from helping others. No one is perfect and we all carry scars we oftFootprint-1en wear for all to see. There’s nothing wrong with making mistakes, as long as you learn and grow from them. I’ve yet to meet anyone who hasn’t made a few. Even the strongest take a beating every now and then. I know this from my own experience.

I learned to defend myself and fight at a very young age and with all the broken noses and black eyes I delivered as a kid, It was the first beating I took, that stands out the most.  I’ve had my share of battles outside of the schoolyards and streets. We all have. What’s most important is that we never give up or settle. In the end, it’s how we treated others. If there ever comes a time when we’ll be judged or remembered. It will most likely hinge on how we overcame life’s obstacles and how we treated others. In the end, I hope to leave a positive footprint on those I have encountered.

Grumpy Old Man Syndrome

I’ve quickly found myself becoming an angry old man. You know, the kid of one who shakes his fist at the clouds and yells at kids to get off his lawn. Considering I was an angry kid and an angry adult, this should come as no surprise to me or anyone who’s been lucky enough to know me for a while. Still, maybe for the first time in my life, I find myself attempting to relearn how to think and go about my life without judging others and perhaps be a tad less harder on myself.

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Forgiveness and closure are powerful tools that have brought me more peace than I could have ever wished for. While I’m still learning and trying new ways to balance life. Having overall lower exceptions when it comes to myself and others has been a game changer. I still struggle to find that balance and overall acceptance that, no matter how much I wish it, we do not live in a perfect world.

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You’re a Lot Stronger Than You Might Think You Are

 

Though it might seem clique. We really are a lot stronger than we’d ever take or give ourselves credit for. I recently had a chance to catch up which both my Father and Brother. During each conversation I was asked how I was feeling and how I was handling the progressing effects of what was diagnosed as Fahrs, but is now being linked to the radiation treatment I received as a child. Gory details aside.

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Both my Dad and my Brother expressed how inspired by my strength and perseverance. Here I am, struggling to walk and maintain any sense of balance and these two are telling me I’m their hero. As a kid, I was a boxing enthusiast. I played all types of sports with varied degrees of skill and success, but what I wanted most was to be a prize fighter. To me, that was tough. However, as I grew up, I came to learn and strongly believe that true strength and toughness came from the inside. The ability to overcome, survive and get past any darkness

that may have descended upon you. Still, with all those beliefs and concrete knowledge of universal truths, it’s something I’ve never allowed myself to apply to my own situation. And while I’ve always been able to feel empathy and sincere concern for those who struggle in any way. I still struggle to apply those same feelings to my own struggles. So, to all my friends, family, loved ones and anyone out there who is fighting any battle, Keep fighting, you’re a lot stronger than you might think you are.

My Visit to the Mayo Clinic.

MC-1After months of hard work trying to obtainn medical records and test results from hospitals in both New Jersey and Washington state. I was finally able to secure my appointments at the Mayo Clinic, book a hotel and flight to Rochester, Minnesota. It was a frustrating process that took months.  A frustrating time where I often questioned whether or not I would be around long enough to to walk through the doors of the storied institution.

Due to the fact that my first appointment was at 7:30 am Tuesday morning. My wife and me flew in on Monday, which gave us an entire day to wander around and explore an area we had never been before.

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Though I didn’t feel that going to the Mayo Clinic would help me find any new answers or a magical cure all for the progressing issues I’ve been experiencing. I arrived open minded, knowing that I would be seeing the very best doctors and getting the kind of concentrated care I had never before experienced. I’d also be giving my wife the peace of mind she more than deserves.

From my first appointment on Tuesday morning. I felt as if I was experiencing a level of care like I had never before seen. The answers of my questions were addressed and answered with a a great deal of detail and explanation. Before my first appointment MRI B-1ended, the initial three I had scheduled had morphed to six and by the time the days second one was over, I had learned more about my condition in a few hours than I had in the two years since being diagnosed.

As the week wore on the amount of appointments, test and waiting began to wear me down both physically and emotionally. After a blood and urine test, an MRI and a CAT scan the doctors all agreed that the calcification my my brain was creating my balance and speech issues, but questioned whether or not a I had FAHRS. Though not  concluded, it seems as if the radiation for a brain tumor I had as twelve year old might be the culprit. Where I had felt so positive during my first couple of days there. the last two days there left me with a much better understanding of my condition but so many more questions than I arrived with.

What’s most bittersweet about all this is I will be returning for another round of appointments and tests in late September. Not to be negative but, I sometimes with that the original diagnosis and death sentence I received (a month to live.) when I was twelve, would have come through. I, nor my family and loved ones, would have to experience and suffer from all the bullshit that followed. And while I’d describe my trip to the Mayo Clinic as very positive. I wish I’d be returning home with a more detailed and defined outline of things.

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