The Good, The Bad and all the rest.

Truth be told, I was never close with my Mom’s Mom. Though she lived just a few blocks away from us, a few steps from where some good friends of mine. Not a thought would occur as I walked past her residence almost daily. The only time I had been in her building or apartment was when I was 7 years old and a night long altercation between my Mom and my future Schlep Dad got loud and violent enough to summon the police. That morning would be the first and one of two times I ever stepped over that threshold. And though we would see one another on holidays (One of my favorite memories being her giving my Schlep Dad two cartons of cigarettes for Christmas. As if to say, “Here, this and the drugs your on, should speed up your death, you piece of shit.” There were attempts later in life to get closer, which included two trips to her new home in New Mexico. But, aside from that, nothing. Still, there was always something badass about her. She drank, smoked, cursed and played guitar. (pictured here.) Basically, she did whatever the fuck she wanted to. And for that, I admire her.

By all means, the day should have and was a very rewarding day. One that started with a good breakfast and the assurance that I would have enough toilet paper to carry me through my final days rewards here in Arlington. The inspection of our new condo furthered our day of rewards and promise that we were one step closer to fulfilling another dream of ours. It wasn’t until arriving home and chatting with my Mom, that the feel good day took a hit. “Your grandmother is dying.” While this came as no shock (She was in her mid nineties and had been in declining physical and mental health for years.) there’s always a sadness that comes with the passing of a family member. Again, there was no shock when, on the next day, my Mother informed me that she passed away in her sleep the night before.

The Last Weekend

Since making my appointment with Rochester, Minnesota’s  Mayo Clinic close to a month ago, I’ve caught myself referring to the weekend of 07/27 – 07/28 as “my last weekend.” Though not intended to be morbid or prophetic of any kind, I somehow equate this long awaited trip to be somewhat of an ending or beginning of some sorts. These next few days will mark what I see as the final chapter of my search for answers. After several years of my troubling symptoms being written off by my asshole doctor as post brain tumor, post stroke symptoms. I finally sought treatment outside his umbrella of  short sighted ignorance which eventually rewarded me with the knowledge that I had another brain tumor and later finding out that I had a rare, virtually unknown neurological disorder known as Fahrs. One that had no cure or known treatment.

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While I do expect this coming week in Rochester to be helpful. My expectations regarding any breakthrough information are almost non existent. Instead, I’m hoping for a sense of closure, as in ways to adjust my lifestyle while moving forward. instead of looking back in anger, asking why. I hope to live in the present, moving and thinking forward. Adjusting to and facing any challenges this disorder might throw my way and tackle the head on. In the end, what’s life without living?

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